Emmanuel Kisembo
Type 1 Diabetes Warrior from Uganda
Emmanuel Kisembo, a type 1 diabetes advocate from Kampala, Uganda, is a special initiatives programs manager at the Sonia Nabeta Foundation, which seeks to alleviate the hefty cost of treatment for low-income children with type 1 diabetes in Africa. Kisembo is also the author of Embracing the Pricks: The Journey to Acceptance Through the Lens of an African Type 1 Diabetes Warrior.
Kisembo was one the first eight advocates to join the NCDI Poverty Network’s Voices for PEN-Plus program, which launched in September 2023.
Stories with Emmanuel Kisembo
Emmanuel Kisembo and Lwimba Kasongo—who live with type 1 diabetes and sickle cell disease, respectively—are tireless advocates for awareness and education about their conditions. They are members of the NCDI Poverty Network’s Voices for PEN-Plus program and were co-captains last summer at an integrated PEN-Plus camp in Zambia, where they mentored nearly 60 youth with noncommunicable diseases. In this article, they share their lived experience and reflections on mentorship, advocacy, and the power of integration in fostering peer support.
Naomi Mwila was attending college for civil engineering, planning her career, and dreaming of a bright future until a diagnosis of type 1 diabetes changed her entire outlook, as a college professor told her that her condition meant she no longer had anything to live for. Then an integrated PEN-Plus camp restored her ability to dream.
Photos from the weeklong camp show joy, education, and empowerment, as young people living with type 1 diabetes or sickle cell disease shared experiences, learned about managing their health and, above all, discovered they were not alone.
“I am a warrior. I am brave. I am triumphant.” With that mantra, participants in Camp Tuli Bonse—an integrated camp for young people living in Zambia with type 1 diabetes or sickle cell disease—learned how a sense of unity can confer benefits beyond physical health.
In recognition of World Diabetes Day, educator and advocate Edith Mukantwari shares her personal story of living with type 1 diabetes in Uganda, the lessons she’s learned, and the importance of a supportive community.
The first International Conference on PEN-Plus in Africa provided a platform for health experts, policymakers, civil society organization representatives, donors, people living with noncommunicable diseases, and community advocates to expedite political and financial backing for PEN-Plus.
At the first International Conference on PEN-Plus in Africa, the science was serious and the messages meaningful. NCDI Poverty Network participants showed their passion and compassion throughout the conference—and even shared moments of levity.
Following the International Conference on PEN-Plus in Africa, the NCDI Poverty Network hosted the first Voices for PEN-Plus Advocacy Summit. The event, held in Dar es Salaam, Tanzania, on April 26, brought stakeholders together to brainstorm ideas for increasing the scope and effectiveness of advocacy initiatives.
In addition to participating in the first International Conference on PEN-Plus in Africa, NCDI Poverty Network members took several occasions to gather, reflect, and renew their commitment to ensuring that lifesaving treatment reaches those who need it most.
The Uganda Ministry of Health, the local government of the Kumi District, and the Uganda Initiative for Integrated Management of Noncommunicable Diseases hosted a celebration of the launch of PEN-Plus in Uganda on 23 November.
“We know what is best for us,” said Anu Gomanju, a person living with rheumatic heart disease in Nepal. “That’s why our needs and voices need to be prioritized.”
Gomanju made that statement in late September, during the online launch event for Voices for PEN-Plus. Sponsored by the NCDI Poverty Network, Voices for PEN-Plus brings together people living with severe, chronic, noncommunicable conditions to advocate for PEN-Plus implementation in sub-Saharan Africa and South Asia.