Nepal NCDI Poverty Commission

Five years. Twenty-nine countries. Over a hundred PEN-Plus clinics. More than 14,000 patients. Together, the many collaborators that compose the NCDI Poverty Network deliver hope and healthcare to children, adolescents, and young adults navigating the dual challenges of poverty and severe, chronic noncommunicable diseases. And this is just the beginning.

The NCDI Poverty Network—through one of its co-secretariats, the Center for Integration Science in Global Health Equity at Brigham and Women’s Hospital—has joined UNICEF in publishing a report on the burden on noncommunicable diseases on children, adolescents, and young adults in South Asia.

A team of NCDI Poverty Network technical experts recently traveled to Nepal to align with partners following the Ministry of Health’s decision to expand PEN-Plus to four more district hospitals. The Network group spent the week collaborating with the Ministry of Health, UNICEF, and the Kathmandu Institute of Children Health (KIOCH) to understand how the success of PEN-Plus initiation in Nepal can be replicated nationally.

“We know what is best for us,” said Anu Gomanju, a person living with rheumatic heart disease in Nepal. “That’s why our needs and voices need to be prioritized.”

Gomanju made that statement in late September, during the online launch event for Voices for PEN-Plus. Sponsored by the NCDI Poverty Network, Voices for PEN-Plus brings together people living with severe, chronic, noncommunicable conditions to advocate for PEN-Plus implementation in sub-Saharan Africa and South Asia.

“Becoming a health advocate and sharing my experience with the world has answered the questions that have plagued me since I was diagnosed as a child: Why do I have rheumatic heart disease? Why do I have to depend on medicine? What is the purpose in my life? I have found my purpose in health advocacy.”

More than 60 representatives of leading global health policy, technical, advocacy, and financing institutions and people living with NCDs gathered at UNICEF House in New York on September 15, 2022, to introduce the PEN-Plus Partnership, a major international initiative to address the global burden of severe NCDs and injuries that cause more than 500,000 avoidable deaths every year among children and young adults living in extreme poverty.

The Nepal NCDI Poverty Commission met in Kathmandu on 6 June 2019 to conduct a mid-term review of activities undertaken in Phase 2 of their work, following publication of their Phase 1 report in March 2018.

The Nepal NCDI Poverty Commission, the Nepal Ministry of Health and Population, and various collaborators gathered in Kathmandu, Nepal for the launch of the Commission’s report on March 26, 2018.