News and Stories
Stepping from the Background to Center Stage
Daniel Mulowa, an 11-year-old with sickle cell disease, experienced a transformative week at an PEN-Plus camp last summer. The camp, held in Zambia for young people with sickle cell disease or type 1 diabetes, showed the power of peer support, health education, and empowerment.
‘Let’s Grow Together’: Voices for PEN-Plus Team Expands
Two sickle cell warriors from Kenya and two type 1 diabetes warriors, one from Uganda and the other from Zambia, recently joined the Network’s Voices for PEN-Plus advocacy program. “Your story makes a difference, your story has impact,” veteran Voices advocate Moses Echodu said in welcoming the newcomers. “And, importantly, your story is what will keep someone else hopeful.”
Scarcity of Data on Type 1 Diabetes Care in Low-Resource Settings Shows Need for PEN-Plus
A first-of-its-kind review of published studies on type 1 diabetes care found a significant lack of records and data on care in primary- and first-referral-level hospitals in low-and lower-middle-income countries. The findings do more than suggest a wide gap in care for people living with the disease in rural areas of low- and lower-middle-income countries; they also underscore the urgent need to fill that gap through proven integrated health care models such as PEN-Plus.
Transforming Pain into Power: Mentors Encourage Young Warriors to Become Advocates
Emmanuel Kisembo and Lwimba Kasongo—who live with type 1 diabetes and sickle cell disease, respectively—are tireless advocates for awareness and education about their conditions. They are members of the NCDI Poverty Network’s Voices for PEN-Plus program and were co-captains last summer at an integrated PEN-Plus camp in Zambia, where they mentored nearly 60 youth with noncommunicable diseases. In this article, they share their lived experience and reflections on mentorship, advocacy, and the power of integration in fostering peer support.
Journal Series to Explore Integration Science as Key to Meeting Global Health Challenges
As global health funding continues to evolve, more than 50 experts from dozens of countries are preparing for publication a new four-paper series that will offer integration science as a tool for unlocking significant gains in health equity worldwide. These collaborators represent a range of organizations and include academics, ministry officials, and people with lived experience from across sub-Saharan Africa and South Asia.
Research Sought on PEN-Plus in Africa
Preparations are in full swing for the Third International Conference on PEN-Plus in Africa, slated for June 23–25 in Dar es Salaam, Tanzania. The conference will celebrate the accelerating momentum of the PEN-Plus movement and highlight the latest research, for which the World Health Organization Regional Office for Africa has issued a call for abstracts.
‘Positioned as a Solution’: Three Intensive Years Preceded Kenya’s National Plan for PEN-Plus
Several countries that have already implemented PEN-Plus are now launching national operational plans to detail how they will use the model to expand, integrate, and decentralize care for people living with noncommunicable diseases. A leader in Kenya’s Ministry of Health recently revealed critical steps in ensuring that country’s plan would be a success.
PEN-Plus Empowers Schoolteacher Living with Type 1 Diabetes in Sierra Leone
Thanks to her continued care at the PEN-Plus clinic in Koidu, Umu Barrie was able to complete her studies and begin her career as a teacher. “Receiving this treatment has encouraged me to be a role model,” she said. “I am now living my life to the full, and I want to help other people with diabetes change their lives.”
Peer Support a Growing Focus of Noncommunicable Disease Care
With peer support having proved to be a key component of PEN-Plus care, the NCDI Poverty Network is developing an integrated training program for peer educators. “We’ve seen beautiful examples of young people who are unafraid to speak boldly about their condition, to be advocates, to be champions,” said Dr. Colin Pfaff, the Network’s associate director of programs. “They are living successful lives and are examples to others, which has such a powerful impact.”
At ISPAD, PEN-Plus Puts Type 1 Diabetes ‘In the First Sentence’ of Care Delivery
The PEN-Plus model of care is not only improving treatment and accessibility for people living with type 1 diabetes, but it’s also placing an emphasis on the disease that had not previously existed in some parts of the world, Dr. Gene Bukhman said during the recent International Society for Pediatric and Adolescent Diabetes conference, held in Montreal.
‘Your Future Ends Here’ - Diabetes Warrior Bounces Back from Stigma
Naomi Mwila was attending college for civil engineering, planning her career, and dreaming of a bright future until a diagnosis of type 1 diabetes changed her entire outlook, as a college professor told her that her condition meant she no longer had anything to live for. Then an integrated PEN-Plus camp restored her ability to dream.
Voices Advocate Promotes PEN-Plus at World Health Summit
When it comes to advocating for health equity and greater access to care for people living with severe noncommunicable diseases, Emmanuella Selasi Hormenoo doesn’t miss an opportunity. Undaunted by sharing stages with global health leaders, the Voices for PEN-Plus advocate represented people with lived experience on two panels at the World Health Summit in Berlin in mid-October.
PHOTO GALLERY: Camp Tuli Bonse, Lusaka, Zambia
Photos from the weeklong camp show joy, education, and empowerment, as young people living with type 1 diabetes or sickle cell disease shared experiences, learned about managing their health and, above all, discovered they were not alone.
‘I Am a Warrior’: PEN-Plus Camp Shows the Power of Peer Support for Young People Living with Severe NCDs
“I am a warrior. I am brave. I am triumphant.” With that mantra, participants in Camp Tuli Bonse—an integrated camp for young people living in Zambia with type 1 diabetes or sickle cell disease—learned how a sense of unity can confer benefits beyond physical health.
African Health Leaders Call for a Greater Investment in Integrated Models of Care
Dr. Ana Mocumbi, co-chair of the NCDI Poverty Network, represented PEN-Plus at a high-level side event during the recent 75th session of the WHO Regional Committee for Africa. There delegates emphasized the urgent need for equitable access to prevention, screening, treatment, and rehabilitation across the continuum of care for people living with severe noncommunicable diseases.
Her Heart Now Mended, Shumirai Magidi Reclaims Her Independence
Shumirai Magidi, a 48-year-old mother of six who lives in a quiet rural stretch of Chabata Village in the Bikita District of southeastern Zimbabwe, is known for her resilience. Yet that strength was put to the test several years ago, when her health began to fail.
Making the Case for Inclusion of Children Ahead of the United Nations High-Level Meeting on NCDs
A commentary authored by Network and UNICEF leaders and published in August by The Lancet Child & Adolescent Health makes the case for better care for children and adolescents living with severe, chronic NCDs in settings of extreme poverty, a case that’s also reflected in the Network’s position statement ahead of the United Nations High-Level Meeting on NCDs in September.
Health Leaders Commit to Accelerating PEN-Plus in Africa
At the second International Conference for PEN-Plus in Africa, recently held in Abuja, health leaders, policymakers, and development partners across Africa renewed their commitment to an accelerated implementation of the PEN-Plus to significantly expand access to care for people living with severe noncommunicable diseases.
ICPPA Positions Nigeria as Leading PEN-Plus Advocate, Media Coverage Shows
The second International Conference on PEN-Plus in Africa positioned Nigeria as a leading advocate for PEN-Plus across the African continent, media coverage of the July conference showed.
Camp to Bring Together Youth Living with Severe Conditions for Fun, Solidarity, and Support
Camp Tuli Bonse, an integrated summer camp, will bring together about 60 children, adolescents, and young adults living with either type 1 diabetes or sickle cell disease for a week of health education, support, solidarity, and fun in Chongwe, Zambia, from August 18 to 22.