News and Stories
Peer Support a Growing Focus of Noncommunicable Disease Care
With peer support having proved to be a key component of PEN-Plus care, the NCDI Poverty Network is developing an integrated training program for peer educators. “We’ve seen beautiful examples of young people who are unafraid to speak boldly about their condition, to be advocates, to be champions,” said Dr. Colin Pfaff, the Network’s associate director of programs. “They are living successful lives and are examples to others, which has such a powerful impact.”
PEN-Plus Conference in Africa Offers Virtual Participation
The second International Conference on PEN-Plus in Africa (ICPPA 2025) will convene on July 8–10 in Abuja, Nigeria, with virtual participation available to healthcare professionals, researchers, and policymakers worldwide.
Creating a Training “Echo”
A recent intensive teaching course aimed to turn care providers already proficient in echocardiography into master trainers. Held in Kenya, the weeklong session included care providers from five countries.
‘A Solution That Works’: PEN-Plus Praised at the Global NCDA Forum
The NCDI Poverty Network’s recent week of advocacy in Rwanda included visits to two hospitals, a conference with more than 700 attendees, a panel with four expert speakers, and one recurring theme: the recognition that PEN-Plus is an effective model for mobilizing action and financing to increase access to care for people living with severe, chronic noncommunicable diseases.
Network Joins UNICEF in Publishing Report on Childhood Noncommunicable Diseases
The NCDI Poverty Network—through one of its co-secretariats, the Center for Integration Science in Global Health Equity at Brigham and Women’s Hospital—has joined UNICEF in publishing a report on the burden on noncommunicable diseases on children, adolescents, and young adults in South Asia.
Network Publishes French Edition of Clinical Handbook on PEN-Plus
The NCDI Poverty Network has published a French edition of PEN-Plus Clinical Tools and Programmatic Standards, a document that defines the diagnostic, treatment, and patient support services that compose PEN-Plus. Several francophone countries have already initiated PEN-Plus.
Youth Camps Bring Support Beyond Clinical Care
Camps that bring together young people living with a severe noncommunicable disease are showing that the benefits of integrated care can extend far beyond clinical settings. The first such camps—held this year in Rwanda and Zimbabwe—hosted young people with type 1 diabetes, sickle cell disease, and childhood heart disease.
Sickle Cell Warrior Presents on the Lifesaving Power of Blood
During the East Africa Blood Disorders Leadership Forum, held in Nairobi in late October, Eunice Owino, a Voices for PEN-Plus advocate, spoke about her experiences living with sickle cell disease.
Springboard for Action
The PEN-Plus Partnership Strategic Plan (2025–2028) had its official launch at Springboard for Action, an event celebrating progress toward global access to care for people living with severe, chronic noncommunicable diseases. The NCDI Poverty Network hosted the event in New York City in September on the sidelines of the 79th Session of the U.N. General Assembly.
Photo Gallery: Circle of Life
In Springboard for Action, a PEN-Plus celebration held in September on the sidelines of the 79th Session of the U.N. General Assembly, leaders from the World Health Organization’s Regional Office for Africa, UNICEF, and Nigeria’s Ministry of Health and Social Welfare all expressed their commitment to PEN-Plus. The event also featured a performance by the Broadway cast of Disney’s The Lion King.
Network Publishes Clinical Tools and Programmatic Standards
The Network has published PEN-Plus Clinical Tools and Programmatic Standards, a document aimed at informing clinic planning, budgeting, and operations by providing a crisp definition of PEN-Plus clinical care, including the diagnostic, treatment, and patient support services available.
Improving Access to Care for Sickle Cell Warriors
In recognition of World Sickle Cell Day on June 19, a Lancet Haematology editorial cited both PEN-Plus and the first International Conference on PEN-Plus in Africa as initiatives that can help ensure improved access to diagnosis, treatment, and care for people living with sickle cell disease in low- and middle-income countries.
Back in Play
For several years, the local health center had dismissed Fatmata Fofanah’s symptoms as the common cold. Yet those symptoms continued to worsen. “We noticed her heart was beating fast and she was short of breath,” said her mother, Mariama. “Even a few minutes of play would make her heart race.”
Network Hosts First Advocacy Summit
Following the International Conference on PEN-Plus in Africa, the NCDI Poverty Network hosted the first Voices for PEN-Plus Advocacy Summit. The event, held in Dar es Salaam, Tanzania, on April 26, brought stakeholders together to brainstorm ideas for increasing the scope and effectiveness of advocacy initiatives.
An Underpinning of Research
In advance of the International Conference on PEN-Plus in Africa, the NCDI Poverty Network team compiled research resources on PEN-Plus and other integrated-science healthcare delivery models.
Language Matters: Both a PEN-Plus Primer and Promise
The NCDI Poverty Network has produced “Language Matters,” a primer intended to sensitize PEN-Plus providers to the communication nuances involved in caring for people living with severe, chronic noncommunicable diseases.
Network Cohosts National Cardiac Technical Working Group
In May, the NCDI Poverty Network, in partnership with the Rwanda Ministry of Health and with support from Team Heart, launched a national Cardiac Technical Working Group.
PEN-Plus Providers in Zimbabwe Receive Cardiac Training
In May, eight PEN-Plus providers in Zimbabwe received initial training in performing and interpreting echocardiograms. Those eight providers—along with seven others—were also trained in managing heart failure.
Rwanda Makes Strides in Cardiac Care Capacity
This spring, the Ministry of Health of Rwanda offered two weeks of practical training for 24 nurses and doctors from a dozen PEN-Plus district hospitals. The training—provided in partnership with the Network, Team Heart, and Partners In Health Rwanda—focused on the skills needed to diagnose and treat heart failure in rural district hospitals.