Network in Action Briefs
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On behalf of the NCDI Poverty Network, Rachel Gasana, senior director of advancement, testified at the multistakeholder hearing on noncommunicable diseases, held at the United Nations Headquarters in New York City. The Network was one of 70 organizations selected to deliver testimonies as a prelude to the United Nations High-Level Meeting on NCDs in September.
In just the past several months, the NCDI Poverty Network has grown from 23 partner countries to 27, with the most recent additions being Eswatini, Lesotho, Niger, and Somaliland.
An audience of patients, clinicians, Ministry of Health officials, and community members recently gathered to celebrate a historic milestone for Sierra Leone: the launch of a purpose-built PEN-Plus clinic at Koidu Government Hospital. Partners In Health, the implementing partner for PEN-Plus in Koidu, has published an account of the clinic’s services.
A newly published study found that only two of 16 health facilities assessed in nine lower-income countries had all the functional equipment needed to diagnose and manage care for people living with type 1 diabetes. Two of the facilities had none of the necessary equipment.
A recent intensive teaching course aimed to turn care providers already proficient in echocardiography into master trainers. Held in Kenya, the weeklong session included care providers from five countries.
Zimbabwe recently finalized its national operational plan for PEN-Plus, becoming the first country to do so among the dozen nations that began implementing PEN-Plus in 2022–23. “This plan shows the great commitment of Zimbabwe’s Ministry of Health and its supporting partners to take the lessons learned from its initial experience with PEN-Plus to the next level,” said Dr. Neil Gupta, senior director of policy for the NCDI Poverty Network.
More than 150 people recently gathered in Port-au-Prince for the formal launch of Haiti’s NCDI Poverty Commission report on noncommunicable diseases, injuries, and poverty. The updated and expanded report, which Commission members began drafting in 2019, represents the country’s commitment to health equity despite ongoing national challenges.
The NCDI Poverty Network has submitted proposals to the World Health Organization suggesting it add analogue insulins and a triple fixed-dose antihypertensive medicine combination to its Model List of Essential Medicines. The Network has also proposed that WHO reclassify hemoglobinopathies to shine more of a spotlight on sickle cell disease and thalassemias.
The WHO Regional Office for Africa recently published a landmark report that details the impact and momentum of the PEN-Plus model, providing a valuable tool for advocacy and information about integrated care for people living with severe, chronic noncommunicable diseases.
The NCDI Poverty Network recently expanded its social media presence to use the rising popularity of Facebook in Africa to good advantage—and to provide additional platforms for its advocacy work in ensuring that children, adolescents, and adults living with severe noncommunicable diseases in low-income countries have access to the lifesaving services they need.
The NCDI Poverty Network recently published a position statement that identifies the crucial pieces—and populations—missing from the global NCD agenda. With this statement, the Network seeks to inform policy discussions in the lead-up to the Fourth United Nations High-Level Meeting on the Prevention and Control of Noncommunicable Diseases, slated for September.
Although the central concept behind PEN-Plus is relatively simple, it can be challenging to explain the model simply. Fortunately, the World Health Organization’s Regional Office for Africa recently shared an updated version of its animated explainer video on PEN-Plus.
Dr. Neil Gupta, a pediatrician and the senior director of policy at the NCDI Poverty Network, will join a panel of healthcare providers in an upcoming webinar that explores how PEN-Plus affects the care of children living with severe NCDs. The International Pediatric Association is hosting the webinar on March 25.
Two NCDI Poverty Network physicians lent their expertise during a recent diabetes training workshop that the Sonia Nabeta Foundation hosted in Uganda.
The NCDI Poverty Network has published a French edition of PEN-Plus Clinical Tools and Programmatic Standards, a document that defines the diagnostic, treatment, and patient support services that compose PEN-Plus. Several francophone countries have already initiated PEN-Plus.
During the East Africa Blood Disorders Leadership Forum, held in Nairobi in late October, Eunice Owino, a Voices for PEN-Plus advocate, spoke about her experiences living with sickle cell disease.
Members of the NCDI Poverty Network’s Programs Team recently visited the PEN-Plus site in Vihiga County in western Kenya.
A recent visit to Zimbabwe by members of the NCDI Poverty Network’s Programs Team yielded encouraging updates on the country’s PEN-Plus program.
NCDI Poverty Network members joined other researchers in assessing a mental health intervention that was integrated into an existing model of chronic care in Malawi. They found that such interventions can be inexpensive if they build off an existing infrastructure, involve lay personnel, and deliver therapy in a group format.
The International Society for Pediatric and Adolescent Diabetes meeting in October shined a spotlight on patient advocates as key stakeholders in developing guidelines for type 1 diabetes care globally.
After several years of hard work, members of the Nigeria NCDI Poverty Commission have published their final Phase 1 report.
In August, CIDRZ held a four-day boot camp for young people living with type 1 diabetes in Zambia. The camp combined entertainment and sports activities with education on self-management of the condition.
The NCDI Poverty Commission of the Democratic Republic of the Congo has published its final Phase 1 report.
In early June, delegations from all eight countries in UNICEF ROSA—the Regional Office for South Asia—convened in Kathmandu for a three-day workshop on severe childhood-onset noncommunicable diseases.
In early June, delegations from all eight countries in UNICEF ROSA—the Regional Office for South Asia—convened in Kathmandu for a three-day workshop on severe childhood-onset noncommunicable diseases.
In advance of the International Conference on PEN-Plus in Africa, the NCDI Poverty Network team compiled research resources on PEN-Plus and other integrated-science healthcare delivery models.
NCDI Poverty Network researchers recently published a scoping review of models of care for people with sickle cell disease in low-income and lower-middle-income countries. Their findings confirmed the care limitations the Network has been seeking to overcome through the implementation of the PEN-Plus model.
The NCDI Poverty Network and the Centre for Infectious Disease Research in Zambia (CIDRZ) hosted a side event, “PEN-Plus Partnership: An NCDI Poverty Network Initiative in Partnership with WHO/AFRO,” on 29 November at the 3rd International Conference on Public Health in Africa, held in Lusaka, Zambia.
Over 400 people came together on 1 October to advocate for the needs of people living with sickle cell disease in Chhattisgarh State in central India.