News and Stories
PEN-Plus Empowers Schoolteacher Living with Type 1 Diabetes in Sierra Leone
Thanks to her continued care at the PEN-Plus clinic in Koidu, Umu Barrie was able to complete her studies and begin her career as a teacher. “Receiving this treatment has encouraged me to be a role model,” she said. “I am now living my life to the full, and I want to help other people with diabetes change their lives.”
Peer Support a Growing Focus of Noncommunicable Disease Care
With peer support having proved to be a key component of PEN-Plus care, the NCDI Poverty Network is developing an integrated training program for peer educators. “We’ve seen beautiful examples of young people who are unafraid to speak boldly about their condition, to be advocates, to be champions,” said Dr. Colin Pfaff, the Network’s associate director of programs. “They are living successful lives and are examples to others, which has such a powerful impact.”
Type 1 Diabetes Study in Liberia Shows Value of Patient Education and Peer Support
A recently published study found that patient education and peer support helped people living with type 1 diabetes in rural Liberia manage their disease. “Their extra barriers to health,” said Dr. Alma Adler, the Network’s research director, “make it even more critical for patients in low-resource settings to gain both problem-solving skills and a strong clinical understanding of their condition.”
An Ethiopian Teenager’s Return to Health and Learning
For several years, without funds for transportation or food, Yismaw Nigussie, a 15-year-old living in rural northern Ethiopia, would risk his health even getting to the clinic that provided treatment for his type 1 diabetes. Then a routine assessment changed the trajectory of his life.
At ISPAD, PEN-Plus Puts Type 1 Diabetes ‘In the First Sentence’ of Care Delivery
The PEN-Plus model of care is not only improving treatment and accessibility for people living with type 1 diabetes, but it’s also placing an emphasis on the disease that had not previously existed in some parts of the world, Dr. Gene Bukhman said during the recent International Society for Pediatric and Adolescent Diabetes conference, held in Montreal.
‘A Real Winning Strategy’: New Partnership Aims to Improve Global Access to Type 1 Diabetes Care
ALIGN-T1D includes global funders of type 1 diabetes programs, leading producers of diabetes medicines and technologies, and members of the worldwide type 1 diabetes community.
‘Your Future Ends Here’ - Diabetes Warrior Bounces Back from Stigma
Naomi Mwila was attending college for civil engineering, planning her career, and dreaming of a bright future until a diagnosis of type 1 diabetes changed her entire outlook, as a college professor told her that her condition meant she no longer had anything to live for. Then an integrated PEN-Plus camp restored her ability to dream.
Voices Advocate Promotes PEN-Plus at World Health Summit
When it comes to advocating for health equity and greater access to care for people living with severe noncommunicable diseases, Emmanuella Selasi Hormenoo doesn’t miss an opportunity. Undaunted by sharing stages with global health leaders, the Voices for PEN-Plus advocate represented people with lived experience on two panels at the World Health Summit in Berlin in mid-October.
PHOTO GALLERY: Camp Tuli Bonse, Lusaka, Zambia
Photos from the weeklong camp show joy, education, and empowerment, as young people living with type 1 diabetes or sickle cell disease shared experiences, learned about managing their health and, above all, discovered they were not alone.
Camp to Bring Together Youth Living with Severe Conditions for Fun, Solidarity, and Support
Camp Tuli Bonse, an integrated summer camp, will bring together about 60 children, adolescents, and young adults living with either type 1 diabetes or sickle cell disease for a week of health education, support, solidarity, and fun in Chongwe, Zambia, from August 18 to 22.
PEN-Plus Conference in Africa Offers Virtual Participation
The second International Conference on PEN-Plus in Africa (ICPPA 2025) will convene on July 8–10 in Abuja, Nigeria, with virtual participation available to healthcare professionals, researchers, and policymakers worldwide.
Network Advocates for Expansion of WHO’s Essential Medicines List
The NCDI Poverty Network has submitted proposals to the World Health Organization suggesting it add analogue insulins and a triple fixed-dose antihypertensive medicine combination to its Model List of Essential Medicines. The Network has also proposed that WHO reclassify hemoglobinopathies to shine more of a spotlight on sickle cell disease and thalassemias.
‘A Solution That Works’: PEN-Plus Praised at the Global NCDA Forum
The NCDI Poverty Network’s recent week of advocacy in Rwanda included visits to two hospitals, a conference with more than 700 attendees, a panel with four expert speakers, and one recurring theme: the recognition that PEN-Plus is an effective model for mobilizing action and financing to increase access to care for people living with severe, chronic noncommunicable diseases.
Dr. Ana Mocumbi Touts Integration at Global Diabetes Event
As a panelist during a recent international diabetes conference in Copenhagen. Dr. Ana Mocumbi, co-chair of the NCDI Poverty Network, highlighted the power of integration in helping to achieve global health equity.
Network Joins UNICEF in Publishing Report on Childhood Noncommunicable Diseases
The NCDI Poverty Network—through one of its co-secretariats, the Center for Integration Science in Global Health Equity at Brigham and Women’s Hospital—has joined UNICEF in publishing a report on the burden on noncommunicable diseases on children, adolescents, and young adults in South Asia.
Overcoming Diabetes Stigma Through Community Education
In a new video, Lucy Johnbosco, a member of the NCDI Poverty Network’s Steering Committee from Tanzania, offers her perspective of what it takes to change perceptions of type 1 diabetes in places where many people have limited understanding of the condition.
Training the Warrior Trainers
Two NCDI Poverty Network physicians lent their expertise during a recent diabetes training workshop that the Sonia Nabeta Foundation hosted in Uganda.
Network Publishes French Edition of Clinical Handbook on PEN-Plus
The NCDI Poverty Network has published a French edition of PEN-Plus Clinical Tools and Programmatic Standards, a document that defines the diagnostic, treatment, and patient support services that compose PEN-Plus. Several francophone countries have already initiated PEN-Plus.
Youth Camps Bring Support Beyond Clinical Care
Camps that bring together young people living with a severe noncommunicable disease are showing that the benefits of integrated care can extend far beyond clinical settings. The first such camps—held this year in Rwanda and Zimbabwe—hosted young people with type 1 diabetes, sickle cell disease, and childhood heart disease.
‘Community Is Crucial’
In recognition of World Diabetes Day, educator and advocate Edith Mukantwari shares her personal story of living with type 1 diabetes in Uganda, the lessons she’s learned, and the importance of a supportive community.