News and Stories
Camp to Bring Together Youth Living with Severe Conditions for Fun, Solidarity, and Support
Camp Tuli Bonse, an integrated summer camp, will bring together about 60 children, adolescents, and young adults living with either type 1 diabetes or sickle cell disease for a week of health education, support, solidarity, and fun in Chongwe, Zambia, from August 18 to 22.
PEN-Plus Conference in Africa Offers Virtual Participation
The second International Conference on PEN-Plus in Africa (ICPPA 2025) will convene on July 8–10 in Abuja, Nigeria, with virtual participation available to healthcare professionals, researchers, and policymakers worldwide.
Network Advocates for Expansion of WHO’s Essential Medicines List
The NCDI Poverty Network has submitted proposals to the World Health Organization suggesting it add analogue insulins and a triple fixed-dose antihypertensive medicine combination to its Model List of Essential Medicines. The Network has also proposed that WHO reclassify hemoglobinopathies to shine more of a spotlight on sickle cell disease and thalassemias.
‘A Solution That Works’: PEN-Plus Praised at the Global NCDA Forum
The NCDI Poverty Network’s recent week of advocacy in Rwanda included visits to two hospitals, a conference with more than 700 attendees, a panel with four expert speakers, and one recurring theme: the recognition that PEN-Plus is an effective model for mobilizing action and financing to increase access to care for people living with severe, chronic noncommunicable diseases.
Dr. Ana Mocumbi Touts Integration at Global Diabetes Event
As a panelist during a recent international diabetes conference in Copenhagen. Dr. Ana Mocumbi, co-chair of the NCDI Poverty Network, highlighted the power of integration in helping to achieve global health equity.
Network Joins UNICEF in Publishing Report on Childhood Noncommunicable Diseases
The NCDI Poverty Network—through one of its co-secretariats, the Center for Integration Science in Global Health Equity at Brigham and Women’s Hospital—has joined UNICEF in publishing a report on the burden on noncommunicable diseases on children, adolescents, and young adults in South Asia.
Overcoming Diabetes Stigma Through Community Education
In a new video, Lucy Johnbosco, a member of the NCDI Poverty Network’s Steering Committee from Tanzania, offers her perspective of what it takes to change perceptions of type 1 diabetes in places where many people have limited understanding of the condition.
Training the Warrior Trainers
Two NCDI Poverty Network physicians lent their expertise during a recent diabetes training workshop that the Sonia Nabeta Foundation hosted in Uganda.
Network Publishes French Edition of Clinical Handbook on PEN-Plus
The NCDI Poverty Network has published a French edition of PEN-Plus Clinical Tools and Programmatic Standards, a document that defines the diagnostic, treatment, and patient support services that compose PEN-Plus. Several francophone countries have already initiated PEN-Plus.
Youth Camps Bring Support Beyond Clinical Care
Camps that bring together young people living with a severe noncommunicable disease are showing that the benefits of integrated care can extend far beyond clinical settings. The first such camps—held this year in Rwanda and Zimbabwe—hosted young people with type 1 diabetes, sickle cell disease, and childhood heart disease.
“Community Is Crucial”
In recognition of World Diabetes Day, educator and advocate Edith Mukantwari shares her personal story of living with type 1 diabetes in Uganda, the lessons she’s learned, and the importance of a supportive community.
“Nothing For Us, Without Us”
The International Society for Pediatric and Adolescent Diabetes meeting in October shined a spotlight on patient advocates as key stakeholders in developing guidelines for type 1 diabetes care globally.
Springboard for Action
The PEN-Plus Partnership Strategic Plan (2025–2028) had its official launch at Springboard for Action, an event celebrating progress toward global access to care for people living with severe, chronic noncommunicable diseases. The NCDI Poverty Network hosted the event in New York City in September on the sidelines of the 79th Session of the U.N. General Assembly.
Photo Gallery: Circle of Life
In Springboard for Action, a PEN-Plus celebration held in September on the sidelines of the 79th Session of the U.N. General Assembly, leaders from the World Health Organization’s Regional Office for Africa, UNICEF, and Nigeria’s Ministry of Health and Social Welfare all expressed their commitment to PEN-Plus. The event also featured a performance by the Broadway cast of Disney’s The Lion King.
CIDRZ Hosts Diabetes Boot Camp in Zambia
In August, CIDRZ held a four-day boot camp for young people living with type 1 diabetes in Zambia. The camp combined entertainment and sports activities with education on self-management of the condition.
Network Publishes Clinical Tools and Programmatic Standards
The Network has published PEN-Plus Clinical Tools and Programmatic Standards, a document aimed at informing clinic planning, budgeting, and operations by providing a crisp definition of PEN-Plus clinical care, including the diagnostic, treatment, and patient support services available.
Improving Access to Care for Sickle Cell Warriors
In recognition of World Sickle Cell Day on June 19, a Lancet Haematology editorial cited both PEN-Plus and the first International Conference on PEN-Plus in Africa as initiatives that can help ensure improved access to diagnosis, treatment, and care for people living with sickle cell disease in low- and middle-income countries.
Challenging Assumptions for Low-Income Countries
A recently published study of people living with type 1 diabetes in two rural clinics in Malawi found a high level of acceptability and satisfaction among those using continuous glucose monitoring, suggesting that the technology is feasible in low-income settings.
Network Hosts First Advocacy Summit
Following the International Conference on PEN-Plus in Africa, the NCDI Poverty Network hosted the first Voices for PEN-Plus Advocacy Summit. The event, held in Dar es Salaam, Tanzania, on April 26, brought stakeholders together to brainstorm ideas for increasing the scope and effectiveness of advocacy initiatives.
An Underpinning of Research
In advance of the International Conference on PEN-Plus in Africa, the NCDI Poverty Network team compiled research resources on PEN-Plus and other integrated-science healthcare delivery models.