News and Stories
Warriors Raise Their Voices—and Spirits—at Camp Wanwɔd
Singing, games, and reflections on community complemented lessons on disease self-management at Camp Wanwↄd, a PEN-Plus integrated camp recently held for young people living with either type 1 diabetes or sickle cell disease in Sierra Leone.
Bukhman Foundation Provides Support for PEN-Plus Integrated Camps
The Bukhman Foundation recently announced a three-year partnership with the NCDI Poverty Network to support the expansion and evaluation of PEN-Plus camps. These integrated camps bring young type 1 diabetes warriors together with those living with other severe, chronic noncommunicable diseases for education about their condition and a greater sense of community.
Pujehun PEN-Plus Clinic Offers a Lifeline in Sierra Leone
Every few months, 19-year-old Mohamed Tejan travels nearly 200 miles from Freetown, Sierra Leone, to a PEN-Plus clinic in the southern part of the country. There he receives care for sickle cell disease, along with free medicine that is not available to him in the capital, free or otherwise. His long journey there—and more recently to a PEN-Plus camp—also connects him with a community of other sickle cell warriors.
Photo Gallery: Camp Wanwɔd 2026
Witness the joy of Camp Wanwↄd, a PEN-Plus camp recently held for young people living with either type 1 diabetes or sickle cell disease in Sierra Leone.
Reclaiming Hope
Margaret Nyirenda’s twin daughters were diagnosed with sickle cell disease at just five months old. Last year, tragically, one of the twins died suddenly while enroute to a hospital in Lusaka, Zambia. Since then, Nyirenda and her husband have been able to enroll their surviving daughter, five-year-old Isabella, in a nearby PEN-Plus clinic, which now delivers treatment to Isabella and hope to the entire family.
‘Let’s Grow Together’: Voices for PEN-Plus Team Expands
Two sickle cell warriors from Kenya and two type 1 diabetes warriors, one from Uganda and the other from Zambia, recently joined the Network’s Voices for PEN-Plus advocacy program. “Your story makes a difference, your story has impact,” veteran Voices advocate Moses Echodu said in welcoming the newcomers. “And, importantly, your story is what will keep someone else hopeful.”
Transforming Pain into Power: Mentors Encourage Young Warriors to Become Advocates
Emmanuel Kisembo and Lwimba Kasongo—who live with type 1 diabetes and sickle cell disease, respectively—are tireless advocates for awareness and education about their conditions. They are members of the NCDI Poverty Network’s Voices for PEN-Plus program and were co-captains last summer at an integrated PEN-Plus camp in Zambia, where they mentored nearly 60 youth with noncommunicable diseases. In this article, they share their lived experience and reflections on mentorship, advocacy, and the power of integration in fostering peer support.
Journal Series to Explore Integration Science as Key to Meeting Global Health Challenges
As global health funding continues to evolve, more than 50 experts from dozens of countries are preparing for publication a new four-paper series that will offer integration science as a tool for unlocking significant gains in health equity worldwide. These collaborators represent a range of organizations and include academics, ministry officials, and people with lived experience from across sub-Saharan Africa and South Asia.
Peer Support a Growing Focus of Noncommunicable Disease Care
With peer support having proved to be a key component of PEN-Plus care, the NCDI Poverty Network is developing an integrated training program for peer educators. “We’ve seen beautiful examples of young people who are unafraid to speak boldly about their condition, to be advocates, to be champions,” said Dr. Colin Pfaff, the Network’s associate director of programs. “They are living successful lives and are examples to others, which has such a powerful impact.”
Photo Gallery: Camp Tuli Bonse, Lusaka, Zambia
Photos from the weeklong camp show joy, education, and empowerment, as young people living with type 1 diabetes or sickle cell disease shared experiences, learned about managing their health and, above all, discovered they were not alone.
Photo Gallery: Zimbabwe Hosts Diabetes and Sickle Cell Disease Camp
Young people living with type 1 diabetes, sickle cell disease, or both gathered in Zimbabwe in August 2025 for a week of health education, peer support, and empowerment, sharing experiences and learning how to manage their health in a camp setting. SolidarMed Zimbabwe, a PEN-Plus implementing partner of the NCDI Poverty Network, hosted the camp.
Camp to Bring Together Youth Living with Severe Conditions for Fun, Solidarity, and Support
Camp Tuli Bonse, an integrated summer camp, will bring together about 60 children, adolescents, and young adults living with either type 1 diabetes or sickle cell disease for a week of health education, support, solidarity, and fun in Chongwe, Zambia, from August 18 to 22.
PEN-Plus Conference in Africa Offers Virtual Participation
The second International Conference on PEN-Plus in Africa (ICPPA 2025) will convene on July 8–10 in Abuja, Nigeria, with virtual participation available to healthcare professionals, researchers, and policymakers worldwide.
Network Advocates for Expansion of WHO’s Essential Medicines List
The NCDI Poverty Network has submitted proposals to the World Health Organization suggesting it add analogue insulins and a triple fixed-dose antihypertensive medicine combination to its Model List of Essential Medicines. The Network has also proposed that WHO reclassify hemoglobinopathies to shine more of a spotlight on sickle cell disease and thalassemias.
‘A Solution That Works’: PEN-Plus Praised at the Global NCDA Forum
The NCDI Poverty Network’s recent week of advocacy in Rwanda included visits to two hospitals, a conference with more than 700 attendees, a panel with four expert speakers, and one recurring theme: the recognition that PEN-Plus is an effective model for mobilizing action and financing to increase access to care for people living with severe, chronic noncommunicable diseases.
Crises Averted: The Story of Amza Musa
Eight-year-old Amza Musa receives free treatment for his sickle cell disease at the PEN-Plus clinic at Koidu Government Hospital in eastern Sierra Leone.
Network Joins UNICEF in Publishing Report on Childhood Noncommunicable Diseases
The NCDI Poverty Network—through one of its co-secretariats, the Center for Integration Science in Global Health Equity at Brigham and Women’s Hospital—has joined UNICEF in publishing a report on the burden on noncommunicable diseases on children, adolescents, and young adults in South Asia.
Network Publishes French Edition of Clinical Handbook on PEN-Plus
The NCDI Poverty Network has published a French edition of PEN-Plus Clinical Tools and Programmatic Standards, a document that defines the diagnostic, treatment, and patient support services that compose PEN-Plus. Several francophone countries have already initiated PEN-Plus.
Youth Camps Bring Support Beyond Clinical Care
Camps that bring together young people living with a severe noncommunicable disease are showing that the benefits of integrated care can extend far beyond clinical settings. The first such camps—held this year in Rwanda and Zimbabwe—hosted young people with type 1 diabetes, sickle cell disease, and childhood heart disease.
Sickle Cell Warrior Presents on the Lifesaving Power of Blood
During the East Africa Blood Disorders Leadership Forum, held in Nairobi in late October, Eunice Owino, a Voices for PEN-Plus advocate, spoke about her experiences living with sickle cell disease.